Shine Like a Sunflower

Will you help us Shine A Light on
Scleroderma this June?

Some 6,000 people across Australia are living with scleroderma right now. This rare chronic connective tissue condition shortens life expectancy by more than 20 years and can be life-threatening. There’s currently no cure for scleroderma.

 

This June is World Scleroderma Month and Scleroderma Australia is bringing a golden glow to more than 110 iconic locations across Australia. Find one near you and help us continue to support and advocate for people living with scleroderma, improve treatments and keep searching for a cure.

 

With your generous help, our goal is to raise $150,000 to fund a scleroderma nurse. We all know that the right medical support at the right time can make an enormous difference to recovery, and our scleroderma nurses do just that!

 

Here’s how you can join the fun and deliver improved lives to people with scleroderma!

Shine Like a Sunflower logo

June 29, 2022

110 locations across Australia

Check out the list below to find an iconic location near you and see it #ShineLikeASunflower in support of scleroderma awareness and research.

How you can help

Spread the word!

Help us raise scleroderma awareness by sharing the Shine Like a Sunflower campaign on your social media.

#ShineLikeASunflower #ShineALightOnScleroderma #WSD2022 #SclerodermaAwareness

Click these links to visit or share

Click these links to visit or share

Donate to help improve lives

We rely on our generous supporters, like you, to continue our important work. Your donation helps people living with scleroderma and their families, and funds research to understand and develop treatments for scleroderma.

Donate through PayPal

Donate through PayPal

Get the facts

What is Scleroderma?

 

Scleroderma – or systemic sclerosis – is a chronic connective tissue condition. It’s generally classified as an autoimmune rheumatic condition. One common symptom is the thickening or hardening of the skin. It comes from the Greek: sclero = hard, derma = skin. Scleroderma can also affect the:

Scleroderma can also affect the:
  • Lungs
  • Heart
  • Kidneys
  • Gastrointestinal tract
Scleroderma is not:
  • Contagious
  • Infectious
  • Cancerous

Scleroderma shortens life expectancy by more than 20 years and can be life-threatening. Some 6,000 people live with the condition in Australia, and women are seven times more likely to develop scleroderma than men.
There’s currently no cure.

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#ShineLikeASunflower 2021 Highlights

In June last year, even in the midst of the pandemic, thousands of people hit the streets to check out the more than 65 landmarks around the country that were lit up in golden light to #ShineALightOnScleroderma.

 

We raised $25,000 for vital support programs and #ShineLikeASunflower went viral on social media thanks to people like you sharing photos of the lit-up-landmarks!

 

Some of the most prominent landmarks and buildings we lit up in 2021 included Federation Square Melbourne, Melbourne Town Hall, Brisbane’s Storey Bridge, the Adelaide Oval, Perth Airport, Hobart’s Franklin Square and Darwin’s Parliament House.

 

This year we’re lighting up to more than 110 iconic locations across Australia – find one near you and help us support Australians living with scleroderma.

These landmarks will #ShineLikeASunflower this June. Find one near you!

Check our Facebook page for any updates or changes due to COVID-19.

VIC

AAMI Park

29 June

Ballarat Central

24 – 30 June

Bolte Bridge, Docklands

29 June

Box Hill Town Hall – Whitehorse City Council

24 – 30 June

Centenary Lights, Geelong

29 June

Clocktower, Sale

29 June

Conservatory in Rosalind Park

28 – 30 June

Council of Strathbogie – gum tree

24 – 29 June

Crown Melbourne

29 June

Drum Theatre, Dandenong

24 – 30 June

Fed Square, Melbourne

29 June

Flinders Street Station

29 June

Foundation on Lake Penhalluriack

24 – 30 June

Fountain on Lake Wendouree & Eureka

24 – 30 June

Gum Tree, Euroa

29 June

LED sign on the Kingsway bridge

29 June

Maffra Rotunda

29 June

Melbourne Town Hall

29 June

Monash Park, Shepparton

24 – 30 June

Mooroopna Water Tower, Shepparton

24 – 30 June

Riverlinks Eastbank

24 – 30 June

Rod Laver Arena

29 June

Sidney Myer Place (large tree), Bendigo

28 – 30 June

Soundtube

29 June

The Wedge – Performing Arts Centre, Sale

29 June

Town Hall Clock Tower

24 – 30 June

Wodonga Water Tower

29 June

QLD

Brisbane – Kangaroo Point

29 June

Burdekin Shire Council

29 June

Central Park Boardwalk, Shaw

28 – 29 June

City Hall and Sandgate Hall

29 June

Donna Marcus Steam 2006, Brisbane City

29 June

Flinders Square, Townsville

28 – 29 June

George Roberts Bridge, Townsville

28 – 29 June

Ipswich City Council

29 June

Little Fletcher Bridge, Townsville

28 – 29 June

Longreach Regional Council

29 June

Mackay – Sir Albert Abbott Adminstration Building

21 – 30 June

Reddacliff Place Sculptures

29 June

Redland City Council

29 June

Rockhampton – Heritage Hotel

29 June

Sir Leo Hielscher Bridges, Brisbane

29 June

Southern Downs Regional Council

29 June

Stanthorpe Building

29 June

Story Bridge, New Farm

29 June

Suncorp Stadium

29 June

The Big Townsville Sign

28 – 29 June

Toowoomba Regional Council

29 June

Toowoomba Victoria Street Bridge (Russell Street to Ruthven Street)

29 June

Townsville Magistrates Court

28 – 29 June

Victoria Bridge, Townsville

28 – 29 June

Warwick Town Hall

29 June

Wharton Reef Lighthouse, Townsville

28 – 29 June

Queensland Country Bank Stadium

29 June

WA

Bell Tower

29 June

City of Greater Geraldton

29 June

City of Kalgoorlie-Boulder

24 – 29 June

City of Perth Council House, St Georges Terrace

29 and 30 June

Council House and Trafalgar Bridge, East Perth

29 June

Elizabeth Quay

29 June

Graham Farmer Fwy Tunnel Entrance, Perth

29 June

Guppy Park

14 – 25 June

Joondalup Drive, Perth

29 June

Koombana Bay Foreshore

14 – 25 June

Koombana Footbridge, Bunbury

14 – 15 June

Mandurah Bridge

29 June

Marlston Hill Lookout 

14 – 25 June

Marlston Waterfront

14 – 25 June

Matagarup Bridge, East Perth

29 June

Queens Park Theatre, Geraldton

29 June

Richmond Reserve and the historic Arrol Crane at Jetty Road

14 – 25 June

Shire of Manjimup

29 June

Sky Ribbon Bridge, Perth Airport

29 June

The Navigators at the Koombana Drive roundabout,

14 – 25 June

Yagan Square

29 June

SA

Adelaide Oval

29 June

Parliament House Adelaide

29 June

Port Road Lights – Hindmarsh

29 June

SA Power Networks, Keswick

1 – 30 June

Sky City Casino

29 June

The Riverbank Precinct Pedestrian Bridge, Adelaide

29 June

Unley Town Hall

29 June

TAS

Cardinal Lights – Mawson Place

24 – 30 June

West Ulverstone – Leven River Bridge

29 June

City of Launceston Town Hall

24- 30 June

Doone Kennedy Hobart Aquatic Centre

24 – 30 June

Elizabeth Street Mall, Hobart

24 – 30 June

Franklin Square Fountain

24 – 30 June

paranaple convention centre

24 – 30 June

Railway Roundabout Fountain, Hobart

24 – 30 June

Waratah – Wynyard Council

29 June

NSW

Big Banana

29 June

City Hall Clock Tower, Newcastle

29 June

Goulburn Visitor Information Centre

29 June

Hilltops Council – Boorowa Town Hall Clock

29 June

Muswellbrook Shire Council

29 June

M8 Motorway

29 June

NT

Frances Drive RSL Light pole

24 – 30 June

Parliament House Memorial Water Feature

29 June

Palmerston Water Tower

24 – 30 June

Palmerston Recreation Centre

24 – 30 June

Memorial Park

24 – 30 June

ACT

Canberra Times Fountain

28 – 29 June

John Gorton Building

29 June

Light Rails Stops

28 – 29 June

Malcolm Fraser Bridge

28 – 29 June

National Carillon, Aspen Island, Parkes

29 June

Old Parliament House

29 June

Royal Australia Mint

29 June

Treasury Building

29 June

Nia's Story

Scleroderma presents unique challenges

People with rare diseases like scleroderma face unique challenges. They may struggle to get an accurate diagnosis and access to effective treatments, and in the case of scleroderma, people may have never heard of the condition before they’re diagnosed with it.   There’s not as much support out there for people with rare diseases compared to more common conditions. This can leave people with rare diseases feeling helpless, anxious and alone. Many GPs don’t know much about scleroderma, which can lead to further feelings of isolation and hopelessness. This lack of knowledge can also impede treatment, leading to increased pain and discomfort.

We’re raising $150,000 to fund a specialist scleroderma nurse

 
To help combat this lack of knowledge and support, Scleroderma Australia is hoping to raise $150,000 to fund a specialist nurse who will help support and advise people living with scleroderma in Australia. Scleroderma nurses provide information, referrals and clinical assistance, including wound management and advice on dressings. Specialist wound care skills are a crucial part of the clinical role and include debridement and infection management – a specialism that is increasingly difficult to access in the community. Our scleroderma nurses are available via phone and video call so people with scleroderma – wherever they live – can call for advice and guidance. Whether that is for questions about wound management, diet or vaccination, chronic illness or disability, or needing help to navigate Australia’s complex health system. As you’ll see in Nia’s story, having direct access to a nurse who specialises in scleroderma treatment can be life-changing for people living with the condition.

Nia’s story – how a specialist scleroderma nurse has helped

 

When I was diagnosed with scleroderma I had recently graduated as a registered nurse. I was shocked that I’d never heard of Raynaud’s syndrome or scleroderma. I wanted to know what had caused it, what symptoms I could expect, and how to manage them.


Having access to a registered nurse with scleroderma expertise at my public hospital clinic has been critical in managing my long scleroderma journey. She’s helped me stay out of hospital many times. Memorably, she helped treat and heal an infection that was tracking underneath one of my fingernails – advising me to keep nails short, rather than long so they’re easier to keep clean. I’d thought it better to have my nails long to protect my fingertips, which are under constant threat of sores and ulcers. Happily, I learned from experience that the scleroderma nurse was right.


The scleroderma nurse taught me that management of Raynaud’s syndrome – a major cause of finger wounds and often a precursor to scleroderma – is all about prevention. Keeping the trunk of the body warm is rule number one, making a thermal vest or undershirt essential. I’ve found that I can keep my hands and feet warm while enjoying a soothing cool breeze on my tight itchy arms if I wear a thermal t-shirt and warm fingerless gloves. That’s right – I’m a proud scleroderma fashion trendsetter!


Besides seeing her at my local public hospital, I phone the scleroderma nurse regularly – perhaps four or five times a year. I have no doubt that if it weren’t for the funding of a specialist scleroderma nurse available by phone and at the hospital, I wouldn’t have all 10 fingers intact, and I quite possibly wouldn’t here to tell you about it.

Will you help us fund a specialist scleroderma nurse?

 
Having an expert to talk to not only helps people living with scleroderma to better manage the condition, it also decreases feelings of isolation and improves our mental health. Support is crucial with a rare disease like scleroderma, and we’re proud to be raising funds to pay for a specialist scleroderma nurse who will provide much needed support to the nearly 6,000 people across the country living with scleroderma.   Will you donate today to help us reach our 2022 fundraising goal? Your generous donation will go directly towards funding a specialist nurse to help treat and advise people like Nia who are living with this life-threatening condition.

Here’s everything you need to help spread awareness on your social media channels

One of the easiest ways to raise awareness is via social media, but it can be hard to know what to post. So we’ve created our very own social media “PR kit” for you to download. 

 

It’s full of ready-to-use images and captions you can use across your social media channels to promote the #ShineLikeASunflower campaign and raise awareness of scleroderma.

 

Whether you share these posts on your individual social channels or on your organisation’s accounts, every bit of publicity helps. Thank you!

 

Poster and Digital Screen

Social Media Tiles

Social Media Videos

Social Media Banner

Facebook Cover

Twitter Banner

Linkedin Banner

Email Signature

Social Media Messages

1. Scleroderma Australia relies on generous donations from individuals and organisations like yours to continue our work to boost awareness, engage community support, and raise vital research funds to support some 6,000 Australians living with scleroderma.

 

Donate today: https://bit.ly/FundASclerodermaNurse

 

#ShineALightOnScleroderma #ShineLikeASunflower #WorldSclerodermaDay2022

 

2. What is scleroderma?

 

Scleroderma can be life-threatening and shortens life expectancy by more than 20 years. More than 6,000 people live with the condition in Australia, and women are seven times more likely to develop scleroderma than men. There’s currently no cure for scleroderma, but Australia is at the forefront of international research.

 

How can you help? Donate today: https://bit.ly/FundASclerodermaNurse

 

World Scleroderma Day – June 29

 

#ShineALightOnScleroderma #ShineLikeASunflower #WorldSclerodermaDay2022

 

3. You can help improve people’s lives with scleroderma by donating to Scleroderma Australia or fundraising for your state scleroderma association. Your donation will empower people living with scleroderma and their families. It will also support research to understand and develop treatments.

 

Donate today: https://bit.ly/FundASclerodermaNurse

 

#ShineALightOnScleroderma #ShineLikeASunflower #WorldSclerodermaDay2022

 

4. June is World Scleroderma Month, and this year we are lighting up more than 110 iconic Australian landmarks in golden light (#ShineLikeASunflower) to raise awareness of scleroderma.

 

Donate today: https://bit.ly/FundASclerodermaNurse

 

#ShineALightOnScleroderma #ShineLikeASunflower #WorldSclerodermaDay2022

 

5. Help Us Shine A Light On Scleroderma

 

Never heard of it? 

• Scleroderma means “hard skin”

• It’s a condition that 6,000 Australians live with

• Women are 7 times more likely to experience scleroderma

 

Donate today: https://bit.ly/FundASclerodermaNurse

 

#ShineALightOnScleroderma #ShineLikeASunflower #WorldSclerodermaDay2022

 

6. This June, Scleroderma Australia is making 110 iconic landmarks across the country #ShineLikeASunflower, and hope to raise $150,000 to fund a scleroderma nurse to support people living with scleroderma. But they can’t do it without your generous support! 

 

Donate here:https://bit.ly/FundASclerodermaNurse

 

#ShineALightOnScleroderma #ShineLikeASunflower #WorldSclerodermaDay2022

 

7. Over 110 iconic Aussie landmarks will #ShineLikeASunflower this June to raise awareness of scleroderma. Find your nearest landmark here: https://bit.ly/ShineALightOnScleroderma and share your photos with #ShineALightOnScleroderma #ShineLikeASunflower #WorldSclerodermaDay2022

 

8. June is World Scleroderma Month. Scleroderma Australia will be running their #ShineLikeASunflower campaign to boost awareness, gain community support, and raise vital research funds to support 6,000 Australians living with scleroderma. 

 

Can you help them this year? Donate here: https://bit.ly/FundASclerodermaNurse

 

#ShineALightOnScleroderma #ShineLikeASunflower #WorldSclerodermaDay2022

 

9. This June we’re asking you to hit the streets for World Scleroderma Month to help us #ShineALightOnScleroderma!

 

Our 2022 #ShineLikeASunflower campaign will see us light up over 110 iconic Australian buildings and landmarks in June to raise awareness of scleroderma.

 

You can do your bit by finding a venue near you and sharing your photos with the hashtags #ShineALightOnScleroderma #ShineLikeASunflower #WorldSclerodermaDay2022

 

FIND YOUR NEAREST LANDMARK: https://bit.ly/ShineALightOnScleroderma

 

#ShineALightOnScleroderma #ShineLikeASunflower #WorldSclerodermaDay2022

Your donation will help support scleroderma research.