About us
About us
Scleroderma Australia was formed in 2005 to facilitate a national representative voice in supporting our scleroderma community across Australia. Delegates from the states make up our Board to ensure we have representation across Australia.
Scleroderma Australia Committee
Executive Committee
- Chair of the Board: Amanda Lawrie-Jones (VIC)
- Deputy Chair: Tara Haneveld (QLD)
- Secretary: Dylan King (SA)
- Treasurer: Iain Pizzey (VIC)
Board of Directors
- Marilyn Singer (NSW)
- Louise Inglese (VIC)
- Sharon Wozniak (QLD)
- Cheryl Ackoy (WA)
- Frances Leaupepe (NSW)
- Stephanie Frade (NSW)
PURPOSE
The purpose of our association is to:
- Coordinate and promote scleroderma awareness across Australia
- Increase community support and engagement for people with scleroderma and their families
- Advocate for people with scleroderma for improved patient outcomes
- Coordinate funding for scleroderma research across Australia
- Support state associations to provide successful and sustainable outcomes.
Scientific support
Medical Advisors to Scleroderma Australia
Scleroderma Australia is supported by a range of medical professionals that provide valuable advice and information on matters such as content for our brochures, data and statistics and attendance at events and seminars. We would like to thank their significant contributions to Scleroderma Australia and the Scleroderma community.
A/Prof Mandana Nikpour
(Rheumatology Vic)
Dr Wendy Stevens
(Rheumatology Vic)
Dr Joanne Sahhar
(Rheumatology Vic)
Prof Susanna Proudman
(Rheumatology SA)
Find your local support groups
Our support groups are located around Australia. They provide emotional support through discussion of common experiences and coping strategies. Click on your state below for more details on your nearest group and when they meet.
For support in
VIC, TAS, SA and WA visit:
For support in
NSW and ACT visit:
For support in
QLD and NT visit: