The Australian Scleroderma Interest Group (ASIG) is a collaboration of rheumatologists who operate multidisciplinary scleroderma centres around Australia. They aim to improve the outcomes of people with scleroderma through a screening program for the heart and lung complications of scleroderma. They undertake a comprehensive research program for aspects of the diseases, based on the Australian Scleroderma Cohort Study.
Scleroderma affects 6,000 Australians.
Scleroderma causes hardening of skin and failure of internal organs.
Women are 7 times more likely to develop scleroderma than men, but the condition can be even more severe in men.
Scleroderma shortens life expectancy, with 23 years of life lost in women and 26 years of life lost in men.
Heart-lung involvement is the major cause of premature death in scleroderma.
Scleroderma reduces quality of life and ability to work. Individuals with scleroderma on average retire 15 years before their healthy population peers.
Individuals with scleroderma who are screened for heart-lung complications at specialised clinics are treated earlier and have better outcomes.
Scleroderma is a costly condition, with hospitalisations, emergency presentations, medical and allied health consultations costing around AUD $64 million per year.
An additional cost of around AUD $44 million per year results from loss of income due to reduced work capacity.
Australia is at the forefront of international research in scleroderma – studies by the Australian Scleroderma Interest Group (ASIG) have led to better care and outcomes for people living with scleroderma.
Associate Professor Susanna Proudman chairs the Executive Committee. It is under the auspices of the Australian Rheumatology Association (ARA).
Membership of the ASIG Executive Committee is open to one physician from each screening centre. Additional members with special skills are co-opted on the Executive Committee as needed.
The cause or causes of scleroderma are unknown. Scientists and medical investigators work to understand the condition. We support a coordinated approach to research for the cause and treatment of scleroderma. We do this through our research program funded by member states, corporate and individual sponsors.
To have access to SPIN online toolkits, login or register at: tools.spinsclero.com. SPIN Cohort users can login directly and public users will need to register first, in 4 easy steps.
The first publicly accessible SPIN toolkit, SPIN-HAND, is now available online through the new SPIN-SHARE platform.
Scleroderma in Cairns: an epidemiological study.
This is a national study run by the New Orleans Scleroderma Patient Care and Research Center (Lesley Ann Saketkoo, MD, MPH, Tulane University Lung Center) using telephone counseling and online questio
1. Implementation and feasibility testing of the new Australian Scleroderma Interest Group algorithm for pulmonary arterial hypertension screening. ASIG has published a new screening algorithm for PAH
1. Prospective validation of the ASIG PAH screening algorithm One of ASIG’s key activities is the Australian Scleroderma Screening Program for early identification of heart and lung complications, suc
Assoc. Prof Peter Yousef – Department of Rheumatology, Royal Prince Alfred Hospital Subject: The utility of biomarkers of interstitial lung disease in systemic sclerosis Continuation of ASIG