Publications

Find out more about scleroderma in these free brochures

Scleroderma Australia produces a number of informative brochures. These explain aspects of scleroderma for medical professionals, people living with scleroderma, their families and friends.

A bright single sunflower

Understanding and managing Scleroderma

This booklet is intended to help people with Scleroderma, their families, and others interested in Scleroderma. It answers some of the questions most frequently asked about Scleroderma.

An array of fruit with a yellow background

Eating well – Nutritional needs in Scleroderma

Advice for those with nutritional concerns relating to scleroderma. The brochure includes sections on: food preparation, physical effects of scleroderma,calcium intake, and maintaining weight and avoiding malnutrition.

A sunflower with world scleroderma day June 29

Scleroderma – More than skin deep​

June 29 is World Scleroderma Day. World Scleroderma Day was created to raise awareness of what it means to have this disabling disease. June 29 is a day to recognise the bravery of those who live with this disease and to demand equal treatment and equal care for people with scleroderma.

A lady holding a bunch of sunflowers near her face

Oral & dental problems in Scleroderma and Sjögren's Syndrome

Because connective tissue occurs throughout the whole body, this disease affects many and various organs and can produce a wide range of symptoms, including oral and dental problems. This brochure discusses these problems and steps to minimise oral symptoms and damage.

Landscape of yellow and orange mountains

Travelling with Scleroderma

This brochure aims to make your plans and travel as stress-free as possible, and also as rewarding and exciting as it should be.

Autum leaves through a blue sky

Hospital checklist – a guide to nursing patients with Scleroderma

Often when a person with scleroderma is hospitalised for surgery or treatment of another condition, they find that the nursing staff may have limited knowledge of scleroderma. The following care plan was developed for a person with scleroderma to take to hospital and give to the nursing staff on admission.

Orange sunflowers in the light

Hospital checklist form

Often when a person with scleroderma is hospitalised for surgery or treatment of another condition, they find that the nursing staff may have limited knowledge of scleroderma. The following care plan was developed for a person with scleroderma to take to hospital and give to the nursing staff on admission.

close up of yellow petals

Dealing with bladder and bowel problems

People with Scleroderma may experience difficulties with their bladder or bowel.

This brochure provides information about why these problems may occur and advice on how you can get help.

Blue sky and sunflower

Helpful tips when having blood taken

Tips to help you undergo blood tests with the minimum of distress and assist the collector to understand your special needs.