Publications

Find out more about scleroderma in these free brochures

Scleroderma Australia produces a number of informative brochures. These explain aspects of scleroderma for medical professionals, people living with scleroderma, their families and friends.

A sunflower with world scleroderma day June 29

Scleroderma – More than skin deep​

June 29 is World Scleroderma Day. World Scleroderma Day was created to raise awareness of what it means to have this medical condition. June 29 is a day to recognise and understand the complexities the condition and to ensure equal treatment and equal care for people with scleroderma.

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Understanding and Managing Scleroderma

This booklet is intended to help people with Scleroderma, their families, and others interested in scleroderma. It answers some of the questions most frequently asked about scleroderma.

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Lung Function Testing and Scleroderma

People with scleroderma and the related scleroderma variant, Mixed Connective Tissue Disease are at risk of lung complications. Lung function testing is one screening tool used to help identify people at risk of developing lung conditions such as pulmonary fibrosis (scarring of the lungs) or pulmonary hypertension (higher than normal blood pressure in the lungs). 

Understanding Scleroderma and the NDIS

When you apply for the National Disability Insurance Scheme (NDIS), it is important to explain how scleroderma impacts your daily life. This brochure provides information for people with scleroderma to help apply for NDIS so you can get access to the supports and services you may need.

An array of fruit with a yellow background

Eating well – Nutritional needs in Scleroderma

Advice for those with nutritional concerns relating to scleroderma. The brochure includes sections on: food preparation, physical effects of scleroderma, calcium intake, and maintaining weight and avoiding malnutrition.

A lady holding a bunch of sunflowers near her face

Oral Medicine in Scleroderma

Because connective tissue occurs throughout the whole body, this condition affects many and various organs and can produce a wide range of symptoms, including oral and dental complications. This brochure discusses these problems and steps to minimise oral symptoms and damage.

Landscape of yellow and orange mountains

Travelling with Scleroderma

This brochure aims to make your plans and travel as stress-free as possible, and also as rewarding and exciting as it should be.

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Hospital checklist – a guide to nursing patients with Scleroderma

Often when a person with scleroderma is hospitalised for surgery or treatment of another condition, they find that the nursing staff may have limited knowledge of scleroderma. The following care plan was developed for a person with scleroderma to take to hospital and give to the nursing staff on admission.

Orange sunflowers in the light

Hospital checklist form

Often when a person with scleroderma is hospitalised for surgery or treatment of another condition, they find that the nursing staff may have limited knowledge of scleroderma. The following care plan was developed for a person with scleroderma to take to hospital and give to the nursing staff on admission.

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Dealing with bladder and bowel complications in Scleroderma

People with Scleroderma may experience complications with their bladder or bowel. This brochure provides information about why these issues may occur and advice on how you can get help.

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Helpful tips when having blood taken

Tips to help you undergo blood tests with the minimum of distress and assist the collector to understand your needs.

Raynaud's Phenomenon

Is the most common early symptom of Scleroderma. It is present at one time or another in about 90% of patients.