A Powerful Start to the Scleroderma Awareness Campaign

Over the past month, people living with scleroderma from every corner of Australia have shared their stories with us—thirty voices, each raw, honest and deeply generous. Together they reveal not only the challenges of living with this rare and complex disease, but also the resilience, humour and strength of our community.

This is the start of something big. Your stories are now in the hands of Melbourne Playback Theatre Company, who will transform them into a short, powerful awareness video designed to make health professionals, policymakers and the public stop, listen and act.

Importantly, 30% of the responses came from rural and regional areas—a reminder that scleroderma is not just a city issue and that support, care and research access must reach everyone.

We’re so proud to walk this path with you.

Read the full story and see what happens next at scleroderma.researchfriends.org