Join us for our May Virtual Education Session with Dr Brett Thombs the director of the ‘Scleroderma Patient-centered Intervention Network, SPIN.
He and his team focus on developing strategies to improve quality of life and reduce disability among people living with scleroderma. He is the Founder and Director of the Scleroderma Patient-centered Intervention Network (SPIN). SPIN is a patient-researcher collaboration that maintains an ongoing cohort of more than 2,000 patients from over 50 sites in 8 countries.
SPIN studies problems prioritized by people with scleroderma and then designs programs to address those problems and tests the programs in trials. In the first months of the pandemic, in 2020, SPIN developed and tested the SPIN-CHAT Program to reduce anxiety among people with scleroderma. SPIN also runs the successful trial of the SPIN-SSLED Program, which is designed to provide support group leaders with training to help them meet their support group goals and reduce their burden in doing this.