About the Research

This research is to explore the experiences, challenges, and supports of parents who have scleroderma while raising children. Your perspective will help to better understand how to support parents like you.

Who can participate?

• 18 years or older
• diagnosed with scleroderma or systemic sclerosis
• parent or guardian of a child (18 or younger) who lives with you at least 50% of the time
• Possess sufficient comprehension and spoken English to complete questionnaires and participate in a focus group
• Have access to a device with internet and email access, and video conference capabilities (both audio and visual)

Interested?

Contact Primary Investigator: Samantha PochopEmail: spochop@twu.edu
Faculty Advisor: Dr. Christine Hainesemail: chaines@twu.edu