08 May Partnering with Spin
The Scleroderma Patient-centered Intervention Network (SPIN) is an organisation of people living with scleroderma, healthcare professionals, and researchers from countries around the world who are working together to develop and share support programs for people with scleroderma.
With funding support from Scleroderma Australia, the Scleroderma Association of New South Wales, Scleroderma Victoria, Scleroderma Queensland and patient organisations from around the world, SPIN has launched its SPIN-COVID-19 Study and the SPIN-CHAT (COVID-19 Home-isolation Activities Together) Program.
The SPIN-COVID-19 Study will examine the experiences of people with scleroderma during COVID-19 with a focus on mental health and well-being. SPIN-CHAT is a program to support people with scleroderma as they face isolation at home during this crisis and other concerns related to their health and well-being.
SPIN-CHAT is a 4-week program. There are three video-conference group sessions a week that provide:
- engagement and fun activities;
- education from experts on staying connected and healthy management of information, managing worry and anxiety, moving your body at home and other strategies to support health and well-being; and
- mutual support among participants.
Groups of 8 eligible participants, along with a trained group leader, will be formed to have fun, learn and support each other over the course of the 4-week program.
This program has now commenced, and we are pleased to confirm that 43 people with scleroderma across Australia will benefit from participating in this great support program.