Living with ILD? Here’s an opportunity to share your experiences

Elbow Insight & Strategy want to get a better understanding from people living with
pulmonary fibrosis and/ or their carers about what life on treatment is really like.
The aim of the survey is to understand:

  • How pulmonary fibrosis impacts your daily life
  • What challenges or difficulties you’ve faced on treatment
  • What kinds of information or support could make a meaningful difference

 

As a thank you for your time and participation, you will receive a $40 Gift Pay voucher.

Surveys like this are important as the feedback helps to give the pulmonary fibrosis
community a stronger voice and shape how support and care can be improved in the future.

You may be eligible to participate if you:

  • Are aged 18 years + and have been diagnosed with Idiopathic Pulmonary Fibrosis
    (IPF) or Progressive Fibrosing ILD (PF-ILD) for more than 6 months
  • Are currently taking, or have previously taken, antifibrotic treatment, including
    • Nintedanib / OFEV®
    • Pirfenidone / ESBRIET® / ARX-PIRFENIDONE / PIRFENIDONE AMEDA /
      PIRFENIDET / PIRFENIDONE DR. REDDY’S / PIRFENIDONE SANDOZ
  •  If you’re an adult (aged 18+) who cares for or supports someone living with IPF or
    PF-ILD who meets the above criteria.

 

If you think you are eligible and would like to take part, please click the link below