Scleroderma in Cairns: an epidemiological study
Scleroderma in Cairns: an epidemiological study....
29 September, 2020
Research
Food Choices and Scleroderma – Research study
This is a national study run by the New Orleans Scleroderma Patient Care and Research Center (Lesley Ann Saketkoo, MD, MPH, Tulane University Lung Center) using telephone counseling and online questionnaires to assess the impact of various diets that might impact symptoms in scleroderma. ...
21 August, 2020
SPIN-HAND: SPIN’S First Publicly Accessible Toolkit for Hand Function
The first publicly accessible SPIN toolkit, SPIN-HAND, is now available online through the new SPIN-SHARE platform....
22 July, 2020
SPIN-SHARE: Supporting People Living With Scleroderma
To have access to SPIN online toolkits, login or register at: tools.spinsclero.com. SPIN Cohort users can login directly and public users will need to register first, in 4 easy steps....
22 July, 2020
2019 Research Program
1. Implementation and feasibility testing of the new Australian Scleroderma Interest Group algorithm for pulmonary arterial hypertension screening. ASIG has published a new screening algorithm for PAH screening in scleroderma to allow early detection of this serious complication and initiation of life-saving therapy. This new algorithm...
30 January, 2019
2018 Research Program
1. Prospective validation of the ASIG PAH screening algorithm One of ASIG’s key activities is the Australian Scleroderma Screening Program for early identification of heart and lung complications, such as pulmonary arterial hypertension (PAH). We have developed and validated a novel, cost-effective screening algorithm for PAH, using...
30 January, 2018
2017 Research Program
Assoc. Prof Peter Yousef - Department of Rheumatology, Royal Prince Alfred Hospital Subject: The utility of biomarkers of interstitial lung disease in systemic sclerosisContinuation of ASIG database extrapolation - Over 1700 patients have contributed their data and biosamples annually to the ASIG database, many for several years. The...
30 January, 2017