Scleroderma Australia

The purpose of our association is to:

• promote scleroderma awareness on a National basis
• disseminate information about scleroderma
• fund and coordinate scleroderma research on a National basis
• advocate for improved and ongoing support for scleroderma patients

Scleroderma Australia is managed by Executive with delegates from each State Organisation. Our mission is fulfilled through:

• Educational seminars and information for patients
• State-based support groups
• Support for scleroderma research
• Website with news and information
• Centralised message bank, 02 9990 5159 (Calls usually returned within 24 hours)
• Annual National awareness campaign

The Future:

As a newly formed association we continue to evolve. A major goal is to augment our Executive Committee with additional persons interested in scleroderma. With a newly appointed Medical and Scientific Advisory Board (MSAB) whose members are distinguished researchers and clinicians in scleroderma and related fields. We are moving forward to identify and fund research in scleroderma and related areas. For more information about Scleroderma Australia or to become a member contact your local state group or Scleroderma Australia directly, or join our Mailing List (hot link). Member state associations run support groups and other services designed to help persons with scleroderma, their families, friends and carers.

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To raise awareness about the condition, Scleroderma Australia has adopted the sunflower as the national icon. The sunflower is symbolic, as, like the sunflower which turns towards the sun for warmth, people with scleroderma are usually more comfortable in warmer weather.